Living with Lewy
Online Registration Form
The experience of people living with Lewy body dementia is so important to both the research agenda and to improving clinical practice. The conference will have a distinct strand that is aimed at people living with LBD and their families and carers, and you will be supported to attend and participate, either in person or virtually.
If you are a person living with Lewy body dementia or a carer and are considering attending the conference, these are the benefits that you will experience:
- Hear the latest research developments and the progress we are making in diagnosing and managing Lewy body dementia, and find out how you can participate in research.
- Have the opportunity to meet and network with other people living with dementia and their carers, who will understand what you are going through.
- Hear inspirational speakers who can help you build resilience and maintain positivity as you live with the impact of Lewy body dementia.
An international organising committee, led by The Lewy Body Society, is working together to design the Living with Lewy strand of the event, and to ensure that the voices of people living with LBD and carers is integrated as part of the main agenda.
To keep up to date with further information on Living with Lewy, please sign up to The Lewy Body Society's newsletter here.
Living with Lewy Programme
The Full programme is below and can also be viewed as PDF
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DAY 1: Wednesday June 15th 2022 |
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Time |
Event/Title |
Speaker |
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12:45 – 1:00 PM |
Welcome to Conference |
The Lewy Body Society |
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1:00 – 1:15 PM |
Welcome to Newcastle |
Dr Lynne Corner |
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1:15 - 2:15 PM |
LUNCH |
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2.15 - 3.45 PM |
Empowerment through Information |
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2:15 – 2:20 PM |
Introduction to Lewy Body Dementia |
Rachel Thompson |
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2:20 – 2:35 PM |
Is my brain playing tricks on me? - Understanding visual –perceptual changes, hallucinations, and delusions in Lewy body dementia |
Rachel Thompson |
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2:35 – 2:50 PM |
Sleep – lived experience |
Kevin Quaid |
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2:50 – 3:05 PM |
Taste of Yoga |
Sidsel McKeith |
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3:05 – 3:20 PM |
Motor symptoms/ Therapies |
Dr Jennifer Goldman |
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3:20 - 3:35 PM |
Mood & Cognition – Lived experience |
Chris Maddocks |
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3:35 - 3:45 PM |
Panel Discussion |
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3:45 - 4:15 PM |
COFFEE BREAK |
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4.15 - 5.30 PM |
Joint Plenary with Scientific Strand |
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4:15 - 4:45 PM |
DLB: Past, Present and Future |
Prof John O’Brien (Cambridge, UK) |
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4:45 - 5:15 PM |
Lewy body dementia: the invisible monster |
Susan Williams (San Francisco, USA) |
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5:15 - 5:30 PM |
Launch of International Coalition of Lewy Body Charities |
Lewy Body Society (Ashley Bayston & Dr Lynne Corner) |
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6:00pm - 8:00pm |
Drinks Reception at Baltic Centre for Contemporary Art |
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DAY 2: Thursday June 16th 2022 |
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Time |
Event/Title |
Speaker |
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08:45 – 09:00 AM |
Welcome |
The Lewy Body Society |
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09:00 - 11.00 AM |
Hope through Research |
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09:00 - 09:15 AM |
Goal orientated Cognitive Rehabilitation |
John Hindle /Linda Clare |
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09:15 - 09:30 AM |
Prodromal stage of dementia with Lewy bodies: cognitive and symptom progression |
Prof Blanc |
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09:30 - 09:45 AM |
(1) Virtual Tour of the Toon |
Ashley Bayston |
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09:45 - 10:00 AM |
COFFEE BREAK |
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10:00 - 10:15 AM |
Research – Biomarkers |
Dr Marzena Kurzawa-Akanbi |
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10:15 - 10:30 AM |
Medication |
Prof John- Paul Taylor |
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10:30 - 11:00 AM |
Panel Discussion |
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11:00 - 11:45 AM |
COFFEE BREAK |
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11.45 - 1.15PM |
Connection Through Community |
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11:45 - 12:00 PM |
Choir – The Forget Me Nots |
Karen Meenan – Lewy Body Ireland |
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12:00 - 12:15 PM |
Lewy Body – Spanish Community |
Jose Gigante |
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12:15 - 12:30 PM |
The (possible) impact(s) of Lewy Body Disease on carers |
Emmanuel Monfort - Senior lecturer, Univ Grenoble Alpes, TIMC laboratory |
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12:30 - 12:45 PM |
Lewy Body Canada |
Tim Hudson |
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12:45 - 1:15 PM |
Panel Discussion |
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1:15 - 2:15 PM |
LUNCH |
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2:15 - 3.45PM |
Lewy Body Organisations |
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2:15 - 2:30 PM |
The Admiral Nurse Service |
Rachel Thompson |
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2:30 - 2:45 PM |
LBDA – Lewy Body Dementia Association |
Julia Wood |
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2:45 - 3:00 PM |
Lewy Body Society |
Jacqueline Cannon |
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3:00 - 3:15 PM |
Lewy Body Dementia Resource Center New York |
Norma Loeb |
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3:15 - 3:30 PM |
Lewy Body Ireland |
Karen Meenan |
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3:30 - 3:45 PM |
Lewy Body Society - France |
Sylvie Seuret – von Zeppelin |
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3:45 - 4:15 PM |
COFFEE BREAK |
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4:15 PM |
DEPART |
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Living with Lewy programme pdf PDF 159Kb
ILDB Conference 2022 Living with Lewy Programme
